swekarin

Last week I went to see the therapist at KS.....long story short but she also found it bizarre that I hadn't had any follow up meetings with the radiation doc. So she and I went down to Radiumhemmet and she got me a time today.

I hate going there....felt nauseous and sick to my stomack, emotional and just out of it. What did she have to tell me this time?!
But I think I was somewhat
mentally prepared. I had so many questions and it was acually a decent talk.

I will try to explain what I found out.....

My calcium values looks good✅
I got a new dosage of levaxin since that value is over what it needs to be. This is also why I can be tired and very emotional and feel stressed. ✅
My cancer indicator has gone up from 15 to 31. This doesn't have to mean anything. It just says that there is something foreign in my body that shouldn't be there. They won't know until after next treatment and scans. But due to increased it decides that I do need a new treatment.

It tough to try to explain this indicator since I have hard times myself to understand what it exactly means. But what I do know is it doesn't mean that the cancer necessarily has increased or spread more than what we know from the scans from April.

The scans from April showed a tiny spread, 2 mm, in my lung, and on my 6th rib the radiodine had done a mark that something is there. I have been wondering about the definition about the rib and the answer I got today I take as a "positive" since it could have been a tumour. It just indicated something but so diffuse that the scan can't identify it.

Sucks these news since, I wish I had gotten the news the marker had decreased and no more treatment. But now I will for sure need a new radiodine treatment. This time they will give a dosage of 7400 micro becquerel. It is 2000 more than last dosage.
I had to ask about the difference in treatments....last time was to prevent spread, this next time is to attack the metathasis.

I also made sure a nurse will call me shortly and book my next session, it will be sometime in October. I really pushed to get more dates and a plan but the doc said that within this illness one can't give plans. One has to go through treatments to see and decide what the next step is. Sucks since I prefer and need dates in general to mentally prepare the different possible steps and scenarios. I guess this is an indicator I need to become even better at being and living here and now.

So how do I feel!? Totally exhausted, tired, head ache. On my way home, heading out with Lakrits. There could be more said but no for now it is enough. Not broken by the news but a bit sad of
course.......